A person presses a button on a talking food scale, which contains two green apples.
Are you still on the lookout for holiday gifts this season? Click the link below to consider items suggested by ophthalmicedge.org for your friends and/or family members living with low vision or blindness.
Paul Caruso spent up to 90 minutes on a bus for people with disabilities to get to Vision Loss Alliance of New Jersey in Denville. The ride back to his Lodi home after weekly classes consistently took an hour and a half, and often involved a transfer.
That was just fine with Caruso. “I considered it all part of the experience, being out and connecting with people,” said the 53-year-old, who has been blind since birth. “I devoted my day to it, and that began as soon as I stepped on the bus.”
Since March, when VLANJ switched to virtual programs because of the COVID-19 pandemic, Caruso has immersed himself in the nonprofit’s online classes and support groups. “It’s really good for my peace of mind,” Caruso said. “It gives structure to my days. It’s nice to feel, `I’ve got to get to get onto that meeting,’ ” he said.
Caruso is a big fan of VLANJ’s self-advocacy group, Moving Forward One Step at a Time. He volunteers as a mentor for the Apps Club, an extension of VLANJ’s iPhone and iPad technology program. He’s enrolled in a peer support group, the Fit and Balance exercise class, and Inquiring Minds, a discussion group that often features guest speakers.
Caruso recently added VLANJ’s new Technology Learning Lab to his busy schedule. He’s learning computer skills using JAWS, a screen reader. Caruso said he wants to be prepared should a job opportunity arise. “It never hurts to try to think ahead, and that’s what I am trying to do,” he said.
Caruso lost his vision to retinopathy of prematurity (previously known as retrolental fibroplasia or RLF). The disease affects some people who were born prematurely and received oxygen therapy as part of their neonatal intensive care.
Caruso attended Lodi public schools. After graduating, he operated a vendor stand at the Richard J. Hughes Justice Complex in Trenton for 22 years. Through a New Jersey Commission for the Blind and Visually Impaired program, Caruso didn’t pay rent, but managed his own inventory of snacks and drinks. He moved back to Lodi in 2010.
He first attended VLANJ in 2015 and enrolled in the technology program. The following year, he signed up for the all-day wellness classes. “Thursdays are awesome! It’s great getting out and connecting with people,” Caruso said.
While he enjoys the virtual programs, Caruso plans to resume his long commute to VLANJ and in-person classes when the pandemic ends. “When we go back, I will be going back!” he said.
Vision Loss Alliance of New Jersey this fall launched Living Independently for Tomorrow (LIFT), a virtual adaptive skills program for people adjusting to sight loss and their family members. LIFT is an online version of VLANJ’s effective in-person Essential Low Vision course, providing basic training in daily life activities.
Over four weeks, LIFT covers: cooking and kitchen safety; low-tech communications and simple solutions, including dialing a phone, medication identification and identifying bills and coins; education in lighting, contrast, optical aids, and basic assistive technologies; and an introduction to mobility and orientation by VLANJ’s mobility specialist. VLANJ also provides resources to participants.
Participants meet with VLANJ instructors over Zoom video conferencing for 90-minute sessions. They also can enroll in the nonprofit’s Beyond Sight wellness programs, such as Now and Zen Yoga and Fit and Balance. For more information, contact VLANJ Senior Program Manager Linda Groszew at lgroszew@vlanj.org.
Researchers led by Rupert Bourne, Professor of Ophthalmology at Anglia Ruskin University (ARU), led a team of researchers who examined more than 500 studies showing trends in prevalence of blindness and vision loss, allowing them to make forecasts about vision loss over the next three decades. Click the link below to read about it!
Two blue eyes stare look outward.
Blindness and sight loss to double by 2050
Blindness and severe vision impairment is predicted to affect almost 900 million people worldwide by 2050-up from around 338 million today, according to a new pre-print study accepted by The Lancet and highlighted on World Sight Day (8 October).
Vision Loss Alliance of New Jersey’s virtual Dining in the Dark event on Oct. 29 attracted an
estimated 500 viewers — and rave reviews!
The event is now available for viewing on our YouTube page by clicking this link: https://bit.ly/dininginthedarkyoutube
Though the ongoing COVID-19 pandemic precluded an in-person gathering this year, the online fundraiser, our major fundraiser of the year, allowed guests to learn about living without sight. VLANJ participants shared their experiences in cooking and dining, orientation and mobility, and assistive technology.
Some quotes from those who joined us:
“You have created a wonderful program out of the ashes of the pandemic,” Maureen D said.
“Thanks for all of your efforts to continue the excellent services VLANJ has to offer students,”
added Debbie A.
We extend our sincere thanks to all the sponsors and donors who supported the event! We are so glad that we can continue to share this virtual experience via YouTube.
Learn more about a new discovery with the potential to reverse vision loss by clicking the link below:
Discovery holds potential for reversing vision loss
An Oklahoma Medical Research Foundation discovery could pave the way for therapies to reverse vision loss common in premature infants and adults. In a new study appearing in the Proceedings of the National Academy of Sciences, OMRF scientists have identified a compound that could give birth to therapies for a host of eye diseases that include retinopathy of prematurity and diabetic retinopathy.